Jake brought me a copy of The Ladies Handbook a few years back when it was still all pain and no answers and I was hitting a wall of exhaustion and frustration - it hit so hard - such a good book
I read it when I was like 2 years into my new diagnosis, housebound, mostly bedbound, still deep in trying to figure it all out and how to live like that. I found the section on the Heroine's Journey especially powerful.
The year A Ladies Handbook for Her Mysterious Illness came out was the year I got to stop endlessly trying to explain my existence to the people who cared about me. I assigned reading. My sweet friends/family/partner at the time hooved it down. Things changed for me when people really got it.
Omggg i LOVE THAT for you. I actually tried to get people to read it for that purpose, but I'm not sure anyone did. Then again, I don't know if I actually reached out to anyone directly and said "please read this, it would mean a lot to me." I posted multiple times about it, and how if someone read it for me I would cry, and I might've even sent links to people, but I was shy about just straight out asking (partly I'm sure because I was afraid of the disappointment if they said no, or said yes and then didn't do it - yay trauma responses!). But it's always on my list for people who ask what they can do to understand a spoonie. And I'm emotionally stronger now, so maybe I'll start asking directly.
Jake brought me a copy of The Ladies Handbook a few years back when it was still all pain and no answers and I was hitting a wall of exhaustion and frustration - it hit so hard - such a good book
RIGHT? And ugh, THAT WALL.
I read it when I was like 2 years into my new diagnosis, housebound, mostly bedbound, still deep in trying to figure it all out and how to live like that. I found the section on the Heroine's Journey especially powerful.
WAY TO MAKE A GIRL CRY. Love you. Thank you.
Oh good. Making you cry is always our goal.
The year A Ladies Handbook for Her Mysterious Illness came out was the year I got to stop endlessly trying to explain my existence to the people who cared about me. I assigned reading. My sweet friends/family/partner at the time hooved it down. Things changed for me when people really got it.
Omggg i LOVE THAT for you. I actually tried to get people to read it for that purpose, but I'm not sure anyone did. Then again, I don't know if I actually reached out to anyone directly and said "please read this, it would mean a lot to me." I posted multiple times about it, and how if someone read it for me I would cry, and I might've even sent links to people, but I was shy about just straight out asking (partly I'm sure because I was afraid of the disappointment if they said no, or said yes and then didn't do it - yay trauma responses!). But it's always on my list for people who ask what they can do to understand a spoonie. And I'm emotionally stronger now, so maybe I'll start asking directly.
Yes! I just asked. The narrator is great, which really helped for my peeps who love audiobooks!
So smart. Direct communication. Who knew? And great to know about the narrator. That’s one of the last books I read with my actual eyeballs.