Everything Molly writes is just so effing on the nose. YES. It's hard/awkward to explain what a RELIEF (inside a tragedy) the pandemic was for sick people.
And what a mindf***.
I never would have thought ME/CFS would be widely understood. Now everyone has a frame of reference, bc we all know SOMEONE with long covid.
I never would have thought overnight, I'd be able to access medical care and not fight for meetings to be on Zoom.
I never would have thought that all my introvert tendencies and long term ability to entertain myself at home would buoy me through a time that cracked many, many people.
I never would have thought, everyone will get a taste of what it's like to be sick and scared and run-around by doctors, or know someone who did. (Which isn't great, but it does raise awareness.)
And I hoped other people would find reasons to keep it all going. I can't imagine it's fun for doctors to be exposed to contagion constantly, wouldn't they rather do telehealth at least for some people? Don't other people love the convenience of not going to the doctor? Inane that they might cancel it all.
I hope doctors in our spaces find ways to keep it going.
I felt every single fucking word of this. The early lightening of the load when everything shut down and accommodations were automatically put in place. The sudden connections with everyone else trying to grapple with, essentially, my ‘normal’ life. The dread as we watched everyone decide they would go back to life as if 2020 never happened. The struggle of continuing to mask to protect my precious baseline. Huge hugs (if you can stand it) coming your way from a fellow MECFS survivor.
RIGHT???? What a strange parallel experience to be having to everyone else. And watching all of that accommodation and connection drift away has been HEARTBREAKING. I still can't believe no one masks anymore, even as long covid has tripled our numbers. Even people who know me and know what could be ahead of them. Even people whose kids have long COVID already. It's wild.
Glad to meet someone else who feels what I feel. Giving huge hugs (masked, after testing) back.
Everything Molly writes is just so effing on the nose. YES. It's hard/awkward to explain what a RELIEF (inside a tragedy) the pandemic was for sick people.
And what a mindf***.
I never would have thought ME/CFS would be widely understood. Now everyone has a frame of reference, bc we all know SOMEONE with long covid.
I never would have thought overnight, I'd be able to access medical care and not fight for meetings to be on Zoom.
I never would have thought that all my introvert tendencies and long term ability to entertain myself at home would buoy me through a time that cracked many, many people.
I never would have thought, everyone will get a taste of what it's like to be sick and scared and run-around by doctors, or know someone who did. (Which isn't great, but it does raise awareness.)
And I hoped other people would find reasons to keep it all going. I can't imagine it's fun for doctors to be exposed to contagion constantly, wouldn't they rather do telehealth at least for some people? Don't other people love the convenience of not going to the doctor? Inane that they might cancel it all.
I hope doctors in our spaces find ways to keep it going.
I felt every single fucking word of this. The early lightening of the load when everything shut down and accommodations were automatically put in place. The sudden connections with everyone else trying to grapple with, essentially, my ‘normal’ life. The dread as we watched everyone decide they would go back to life as if 2020 never happened. The struggle of continuing to mask to protect my precious baseline. Huge hugs (if you can stand it) coming your way from a fellow MECFS survivor.
RIGHT???? What a strange parallel experience to be having to everyone else. And watching all of that accommodation and connection drift away has been HEARTBREAKING. I still can't believe no one masks anymore, even as long covid has tripled our numbers. Even people who know me and know what could be ahead of them. Even people whose kids have long COVID already. It's wild.
Glad to meet someone else who feels what I feel. Giving huge hugs (masked, after testing) back.